April 10, 2012 – One Year Ago Today

I know what I was doing 1 year ago, I was pooping my pants.  It was 1 year ago today that we got 'the call'.  Actually as I write this we would have already have gotten the call.  Right now we would have been telling the kids and getting our stuff ready to go. 

It has been an eventful year to say the least.  It was a year that I almost spent more time in Rochester than I did at work. My work was VERY good about all the time I got off, I can not tell you how much easier it was not to have to worry about work while in Rochester, especially since I was there many times.  They really were very good to me.  The kids were just amazing with all the time that we were out of town, they did an amazing job without us.  I can also not thank everyone who was so helpful and generous to us during the past year.  If I was to list all of the people who helped us Google would need more disk space to hold just the list.

In that time we got to know many people who we will not soon forget and still communicate with a few of them.  There were three cardiac transplants last year on the early morning of the 11th.  Two adult and one pediatric patient were transplanted 1 year ago, then 10 days later there was another adult cardiac patient.  So there were 4 cardiac transplant patients in the house at one time and we all go to go through the experience together. 

Someone we met in the transplant house just a about 1 week ago got the liver he was waiting for.  For those who were in the house about a year ago, the person I am talking about is Steve L. who has familial amyloidosis.  Margaret got a call from him today telling us the good news.  We are all very excited for him!!