We were at Mayo this week and it turned out pretty good. It was too early to tell if the ‘little chemo’ she is currently on is working or not, maybe in a month they can tell something.
As far as transplant is concerned she is doing well, she had dropped her steroid (prednisone) to 4 mg a day two weeks before we went for our appointment. They did a biopsy to see if there is any rejection was happening and the answer is No Rejection! Yippee!! Obviously she is on other anti-rejection drugs, ok ya got me, technically she is on only one other anti-rejection med (tacro). They have found that people who have gotten PTLD need very little anti-rejection meds.
She has developed a small pleural effusion though, nothing serious and she is now on a very low dose of lasix (water pill) to get rid of the extra fluid. She did have a bigger pleural effusion after transplant and it took a while to get rid of it, time will tell with the current one how long it take to get rid of it.
Where we go from here you ask…. Well we go back sometime in January to see what is happening with the amyloid, transplant will see us if we are there but didn’t really have a need to see us back that quick. That’s all we know for now.
Thanks.
Glad to hear things are moving along pretty well. Regarding Lasix, that is the medication my doctor gave me after my knee surgery last summer that after a couple of weeks sent me to the hospital in an ambulance. Mother took it and did just fine. Just FYI.
ReplyDeleteLove and hugs, Auntie
Every day it made me more light headed and I finally couldn't function. Auntie
ReplyDelete