Ok, ok, I have been slacking off, I admit it. It has been a few days since I posted something.... get over it, I know I have.
Well here it goes, bottom line is things are still going good. A few days ago at the end of dinner about a dozen Mennonites walked into the dinning room and serenaded us, it REALLY sounded good. Apparently they sing at both transplant houses and the Hope Lodge (similar to the transplant house but for cancer patients). During the day some of them work here in the transplant house with housekeeping of the public areas and they are all very nice.
Friday was a big day, the weather was not bad so we walked to the clinic for her appointments! We were a little concerned to try it to early because if you start out and can't make it you are stuck. It is only about 6 blocks and she did a great job. We left to have plenty of time since she gets her blood work drawn at 7:30 - 7:45 because of her meds. She has to get the blood drawn right before she takes her anti-rejection meds to see what her levels are at the end of the dose. So far they had been steady and haven't fluctuated hardly at all.
Margaret started cardiac rehab on Friday. It was the first meeting and it was mostly an orientation meeting but she did do a 6 minute walk. They see how far you can walk in 6 minutes. She has done that before when she was waiting for the heart. They say that it is a surprisingly reliable test even though I would think you could easily mess with the results. She will being doing rehab Mon, Tues and Wed with her cardiac biopsy on Thursday. Friday will be a physically off day to recover from the biopsy. Obviously (to me) there are other appointments throughout the week, blood tests, chest x-rays, meeting with transplant docs, etc, etc, etc.
We are meeting some very nice people at the transplant house and most are doing well, a few have had some minor hiccups that have landed them in the hospital but that is not unusual. Other than not having a TV in your room and having to camp out to get a TV so you can watch a particular show it has been a good experience. The sisters who run the house are very nice and helpful.
That's all I can remember....
FYI U Bob, I did check, they only transplant, the do not do installs.
Yes, we have all been anxious waiting for an update. So pleased all is going well. She is regaining her strength quickly I feel. You are both taking quite a journey, one that we have prayed for. Hugs. Auntie
ReplyDeleteWould love for you to get up information about our Mayo support meeting on August 13th. Also would like them put up in all of the hotels and motels. I can make up a nice flyer. Also will send you a general flyer about meetings in general so people can see they are not alone and when they get home they can attend a meeting too.
ReplyDeleteHave a great Mother's Day Tomorrow. Both of you.
Love,
Muriel
Updates please...we are starving for updates.
ReplyDeleteHi Margarte and Jim and Matt and Amy,
ReplyDeleteHow was Mothers' Day? So much to be thankful for and Margaret being able to walk to the appointments. Wow!!
Paul and I had a similar apartment, but our own kitchen - small but we did not have to share. Very little prep area - the counter was about 2 1/2 feet wide.
It is cool in California - upper 50s, low 60s. Planning Eric's parties and Scout-O-Rama. Just finished Cub Scouts. Boys earned Map & Compass Belt Loop. Some caught on great to longitude and latitude and some were stuck on where is the Atlantic Ocean.
I am sorry I have missed your calls Margaret. I will try to call your cell phone now.
Love ya!!!!!!
Linda