Day 29 - May 9th

If there is not a post on a given day just reread this line:

'It was a boring day of appointments, cardiac rehab, cooking, cleaning, laundry and shopping.'

That should about do it 'cause if there isn't a post that is about what happens during the day.  Boring....

Now about today, we met with a blood clot doc (I am sure he thinks he has a more impressive title) who said that her blood clot in her neck is nothing to worry about but she will just have to be on blood thinners for 3 months and all cardiac biopsies will need to go through the leg.  The tricky part is if she went on the blood thinners she was on before it would become effective (therapeutic level) when she would need to stop them because of her heart biopsies so they are just going to stick with a daily shot she gives herself.  They are to be given sub-q which I found out means in fat, I could take them anywhere but she has to pick certain spots.

She started cardiac re-hab today and will be doing that Monday - Wednesday for an hour each day.  So far she says it is not bad but she started at a better place than some who have transplants.

If the weather is good we are now walking to the clinic, it is not really far, about 6 blocks and downhill so not a real strain and she is able to talk all during the walk.

If it is a day at Mayo it must mean that your schedule must be changing, we have had days where we have had to print the schedule 3 times and at the end of the day it was changed again.  We originally had Tuesday AM open but tomorrow it now has a dermatologist from transplant appointment.  There are some patches on her skin which have been there a while and a Mayo dermatologist has said is nothing but they want there transplant dermatologist to take a look.  Yes, transplant has there own dermatologist, the anti-rejection drugs can have an effect on your skin, skin cancer is the thing they watch for.  Fortunately is is an easily treatable kind that usually shows up if one shows up at all.

We were also able to attend the solid organ transplant support group meeting that is at the hospital on Monday afternoons.  I had been to one before but this was her first, she said she likes it and we will go back again when our schedule permits.

That is all I have for now, as Tigger says TTFN (Ta ta for now)